Hypoxic ischemic encephalopathy (HIE) Research Appeal

Hypoxic Ischemic Encephalopathy (HIE) is a serious birth complication that affects 1 in 1,000 babies in the UK each year. Lack of oxygen and/or blood flow to a baby’s brain before, during labour, or at birth, can lead to a brain injury or HIE. This type of brain injury can vary from mild to fatal and affects areas of the brain that are vital for motor coordination, learning, and memory function.

Typically, after a normal pregnancy, babies born and diagnosed with HIE can fully recover and have no long-term health problems.

Unfortunately, some will need ongoing healthcare support and face uncertainty about how the brain injury will affect them in the long run.

The purpose of this research project is to build a better understanding of how to support parents and patients with HIE. There are three main areas this research will cover:

  • to understand parents’ experience, and perception of the treatment and stay in the Southampton Neonatal Intensive Care Unit (NICU).
  • to understand how this experience has impacted their life and their experience in raising a child with HIE.
  • to investigate parents’ emotional experiences.

With your support, we can provide families with the help they need and make sure they aren’t facing an HIE diagnosis alone.